Meet My Tribe: Michael

c54a1611-2df8-48ac-a553-723e77573d1dToday is a special day in my world.  It is the 13th wedding anniversary for Michael and I.  Anniversaries, birthdays and holidays hit differently when you’re chronically or terminally ill.  My illness is not necessarily terminal, but it is killing me slowly and will eventually land me on the transplant list.  This thought is never far from my mind, but that’s not what today is about.  Today is about celebrating the love and life that I have now, and the life that I have right now is pretty awesome.

Michael and I have been together closer to 16 years, but today is the anniversary of the day that I said, “I do” and became Mrs. Perrine.  Michael and I have our ups and downs, and there are a lot more downs now that I am sick, but we survive each and every obstacle that is thrown our way.

ae28c1ad-0443-4531-a0db-4350750422dbMichael’s true colors were shown when I was diagnosed.  He stepped up and did any and every single thing that I needed him to do – no matter how difficult.  He works a full schedule at Amazon, then comes home to take care of me.  He’ll come home and cook and clean, help me get my bath, take care of the kids, etc.  This man does it all for me and rarely complains.  To say that I am blessed would be the understatement of the century.

7a60d8ea-4d3f-4c84-8706-a9dcd5f6de71When I was diagnosed I went through my fair share of emotions. Hell… it was an emotional roller coaster in my world for the first two years of my autoimmune life. Michael went through his share of emotions, too, but never let on that he was troubled by it all. He watched me get sicker and sicker. He watched me go through depression after depression and never once left my side. He faced the fact that he will likely watch me die and that is a hard pill to swallow for just about anyone. Through it all he stayed my hero. He never failed and never faltered. He never made me feel bad for getting sick (I still carry a lot of guilt over it).

5d690e25-7d5c-4978-b440-71cc746d5785When it comes to my autoimmune life, Michael never misses a beat. He’s at every single doctor’s visit, appointment, test and procedure. He’s there for me when my medical anxiety is out of control and he’s there in the middle of the night when bad dreams startle me awake.  He never leaves me when I need him, maybe even to a fault!  My wish for every spoonie is that they have the same level of support that I have in my husband.

Stay strong autoimmune warriors and friends and family!  Love and light now and always!

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